National Center for Education in Maternal and Child Health
2000 15th Street, North, Suite 701
Arlington, VA 22201-2617
703-524-7802
National Institutes of Health, National Heart, Lung, and Blood Institute
NHLBI Sickle Cell Disease Branch
2 Rockledge Center
6701 Rockledge Drive
MSC 7950, Room 100420
Bethesda, MD 20892-7950
301-251-1222
Sickle Cell Disease Association of America
3345 Wilshire Boulevard, Suite 1106
Los Angeles, CA 90010-1880
213-736-5455 / 800-421-8453
Genetic Disease Resource Center
California State Department of Health Services
Genetic Disease Resource Center
2151 Berkeley Way, Annex 4
Berkeley, CA 94704
510-540-2534
NIH Comprehensive Sickle Cell Centers
By State: AL CA GA MA MI NY NC PA TN
Sickle Cell Center
College of Medicine
University of South Alabama
307 University Boulevard, CSAB 224
Mobile, AL 36688
334-460-7334
Steven R. Goodman, Ph.D., Director
Sickle Cell Center
San Francisco General Hospital
1001 Potrero Avenue. Rpp, 6J-5
San Francisco, CA 94110
415-206-5169
William C. Mentzer, M.D., Director
Sickle Cell Center
Department of Medicine, RMR 304
University of Southern California
2025 Zonal Avenue
Los Angeles, CA 90033
213-342-1259 As of 4/22/2000 this number was not working. We are following up.
Cage S. Johnson, M.D., Director
Sickle Cell Center
Brady Memorial Hospital
80 Butler Street, S.E.
P.O. Box 109
Atlanta, GA 30335
404-616-3572
James R. Eckman, M.D., Director
Boston Sickle Cell Center
Boston City Hospital
818 Harrison Avenue, FGH-2
Boston, MA 02118
617-534-5727
Lillian E. C. McMahon, M.D., Director
Sickle Cell Center
Wayne State University School of Medicine
Childrens Hospital of Michigan
3901 Beaubien Boulevard
Detroit, MI 48201
313-577-1546
Charles F. Whitten, M.D., Director
College of Physicians & Surgeons
Department of Pediatric Haematology
Columbia University
630 W. 18th Street
New York, NY 10032
212-305-6531
Sergio Pomelli, M.D., Director
Sickle Cell Services
Department of Pediatric Haematology
Harkness Pavilion
180 Fort Washington, FL 5
New York, NY 10032
212-305-2466
Brenda Martin, C.P.N.P.
Sickle Cell Center
Montefiore Medical Center
111 E. 210th Street
Bronx, NY 10467
718-920-7373 / 920-4321
Lennette J. Benjamin, M.D., Co-Director
Duke Univ./U.N.C. Sickle Cell Center
Box 3939 Duke University Medical Center
Durham, NC 27710
919-684-6464
Marilyn J. Telen, M.D., Director
Sickle Cell Center
The Children's Hospital of Philadelphia
Division of Haematology
34th Street & Civic Center Boulevard
Philadelphia, PA 19104
215-590-3423
Kwaku Ohene-Frempong, M.D., Director
Comprehensive Sickle Cell Center
Meharry Medical College, Box A10
1005 D.B. Todd, Jr. Boulevard
Nashville, TN 37208
615-327-6763
Ernest A. Turner, M.D., Director
North Alabama Sickle Cell Fdn.
P.O. Box 813
Huntsville, AL 35804
Sickle Cell Disease Association of America, Mobile Chapter
1453 Springhill Avenue
Mobile, AL 36604
Sickle Cell Foundation of Greater Montgomery
P.O. Box 9278
Montgomery, AL 36105
Tri-County Sickle Cell Disease Association
809 Jeff Davis Avenue
P.O. Box 1162
Selma, AL 36702
Sickle Cell Disease Assn. West Alabama Chapter
P.O. Box 3151
Tuscaloosa, AL 35403
Southeast Alabama Sickle Cell Association
P.O. Box 1079
Tuskegee, AL 36088
SOUTHERN REGIONAL SICKLE CELL ASSOCIATION, INC.
177 State Street, 3rd Floor
Bridgeport, CT 06604
Sickle Cell Disease Assn. of America, Inc. Volusia County Chapter
P.O. 9083
Daytona Beach, FL 32120
Sickle Cell Disease Foundation of Broward County Inc.
P.O. Box 8535
Ft. Lauderdale, FL 33310
Alachua County Sickle Cell Foundation
1510 W. University Avenue
141 Castle Drive
Gainesville, FL 32607
Jacksonville Area Sickle Cell Disease Foundation
1133 Ionia Street
Jacksonville, FL 32206
Dade County Sickle Cell Foundations - Miami Comprehensive Sickle Cell
794 NW 18th Street
Miami, FL 32513
Escambia County Sickle Cell Foundation
P.O. Box 9132
Pensacola, FL 32513
St. Petersburg Sickle Cell Disease Foundation
P.O. Box 14141
St. Petersburg, FL 33733
Florida State Sickle Cell Foundation, Inc.
P.O. Box 11982
Tampa, FL 33680-1982
University of South Florida Comprehensive Sickle Cell Center
Box 37
12901 Bruce B Downs Blvd.
Tampa, FL 33612
(813) 972-8430, 24 hours
Sickle Cell Foundation of Palm Beach County, Inc.
P.O. Box 2402
West Palm Beach, FL 33402
Georgia Comprehensive Sickle Cell Center
Grady Memorial Hospital
Atlanta, GA 30335
Telephone: (404) 616-3572
LOUISIANA REGIONAL SICKLE CELL FOUNDATION
Alexandria Sickle Cell Anemia Foundation
2625 Third Street
Alexandria, LA 71302
Baton Rouge Sickle Cell Anemia Foundation
2301 North Avenue
Baton Rouge, LA 70808
New Orleans Sickle Cell Anemia Foundation
3200 St. Bernard Avenue
New Orleans, LA 70119
Telephone: (504) 943-4532
Sickle Cell Center of Southern Louisiana
Tulane Univ. School of Med.
1430 Tulane Avenue
New Orleans, LA 70112
Telephone: (504) 588-5413
Sickle Cell Anemia Rehabilitation and Education Program, Inc.
P.O. Box 19144
Lake Charles, LA 70616
Telephone: (318) 439-1095 (218) 439-4720
Northeastern Louisiana Sickle Cell Anemia Foundation
3201 Jackson Street
Monroe, LA 71202
Eighth Regional Sickle Cell Anemia Foundation
141 ONB Building, Suite 505
Monroe, LA 71201
Telephone: (318) 325-9796
Northwest Louisiana Sickle Cell Anemia Foundation
2200 Milam, Room 9
Shreveport, LA 71103
Harrison County Sickle Cell Anemia Foundation, Inc.
P.O. Box 7103
Gulfport, MS 39501
Jackson-Hinds Sickle Cell Clinic
P.O. Box 3437
Jackson, MS 39207
Telephone: (601) 362-5321
Jackson County Association for Sickle Cell Disease, Inc.
3510 Magnolia Street
P.O. Box 2517
Pascagoula, MS 39567
University of North Carolina Comprehensive Sickle Cell Program at Chapel Hill
3002 A.P.C.F.
UNC Hospitals
Chapel Hill, NC 27514
Telephone: (919) 966-2467 (919) 966-2468
Duke University Comprehensive Sickle Cell Center
Durham, NC 27708
Telephone: (919) 684-3401 (919) 684-6464
Operation Sickle Cell, Inc.
2409 Murchison Road
Fayetteville, NC 28301
Triad Sickle Cell Anemia Foundation
1102 East Market St.
Greensboro, NC 27420-0964
Sickle Cell Disease Association Southern Piedmont,Inc.
841 Baxter Street, Suite 116
Executive Park
Charlotte, NC 28202
Eastern Area Sickle Cell Association, Inc.
825 Gum Branch Road, #119
Jacksonville, NC 28540
American Sickle Cell Anemia
P.O. Box 1971
10300 Carnegie Ave
Cleveland, OH 44106
C.O.B.R.A. Sickle Cell Program
54 Morris Street
Charleston, SC 29403
Telephone: (803) 722-2964
James R. Clark Memorial Sickle Cell Foundation
P.O. Box 4784
Columbia, SC 29240
Orangeburg Area Sickle Cell Foundation
P.O. Box 892
Orangeburg, SC 29116
Telephone: (803) 534-1716
Barksdale Sickle Cell Anemia Foundation
P.O. Box 191
Spartanburg, SC 29204
Mid-South Sickle Cell Center-Lebonheur Children's Med Center
848 Adams Stret
Memphis, TN 38103
Telephone: (901) 572-6191
Meharry Comprehensive Sickle Cell Center
1005 D. B. Todd Blvd.
Nashville, TN 37208
Telephone: (615) 327-6763 FAX: (615) 327-6028
GENES
(Genetic Network of the Empire State, Puerto Rico, and the Virgin Islands)
GENES
New York State Health Department
Room 299
P.O. Box 509
Albany, NY 12201-0509
Karen Greendale, M.A.
GLaRGG
(Minnesota, Wisconsin, Illinois, Indiana, Ohio, Michigan)
Great Lakes Regional Genetics Group
328 Waisman Center
1500 Highland Avenue
Madison, WI 53705-2280
608-265-2907
Great Plains Genetic Service Network
(N. Dakota, S. Dakota, Nebraska, Kansas, Oklahoma, Iowa, Missouri, Arkansas)
GPGSN
Division of Medical Genetics
Department of Pediatrics
University of Iowa
Iowa City, IA 52242-1038
319-356-4860
Delores Nesbitt, Ph.D.
Mid-Atlantic Regional Human Genetics Network
(Pennsylvania, New Jersey, Delaware, Maryland, Washington, D.C., Virginia, W. Virginia)
MARHGN
c/o Family Planning Council
260 South Broad Street, Suite 1000
Philadelphia, PA 19102-3865
215-985-2600
Gail Chiarello, M.C.P.
Mountain States Regional Genetic Services Network
(Montana, Wyoming, Utah, Arizona, Colorado, New Mexico)
MSRGSN
Colorado Department of Health
FCHS-MAS-A4
4300 Cherry Creek Drive South
Denver, CO 80222-1530
303-692-2423
Joyce Hooker
New England Regional Genetics Group
(Maine, New Hampshire, Vermont, Massachusetts, Connecticut, Rhode Island)
NERGG
P.O. Box 670
Mt. Desert, ME 04660-0670
Joseph Robinson, M.P.H.
Pacific Northwest Regional Genetics Group
(Washington, Oregon, Idaho, Alaska)
PacNoRGG
Oregon Health Sciences University
CDRC-Clinical Services Building
901 E. 18th Avenue
Eugene, OR 97403
541-346-2610
Kerry Silvey, M.A.
Pacific Southwest Regional Genetics Network
(California, Nevada, Hawaii)
PSRGN
California State Department of Health Services
2151 Berkeley Way, Annex 4
Berkeley, CA 94704-9802
510-540-2696
Melinda Lassman, M.A., M.S.
Southeastern Regional Genetics Group
(Kentucky, Tennessee, N. Carolina, S. Carolina, Louisiana, Mississippi, Alabama, Georgia, Florida)
SERGG
Emory University School of Medicine
Pediatrics/Medical Genetics
2040 Ridgewood Drive
Atlanta, GA 30322-4870
404-727-5844
Mary Rose Lane
Texas Genetic and Newborn Screening Program (Texas)
TEXGENE
Bureau of Children's Health
Texas Department of Health
1100 W. 49th Street
Austin, TX 78756-3199
512-458-7111 x2071
William Moore, M.H.A.
State Genetics Services Coordinators
By State:
AL AK AZ AR CA CO CT DC DE FL GA HI ID IL
IN IA KS KY LA ME MD MA MI MS MO MT NE
NV NH NJ NM NY NC ND OH OK OR PA PR RI SC
SD TN TX UT VT VA VI WA WI WV WY
State Genetics and Hemoglobinopathies
Bureau of Family Health Services
Alabama Department of Public Health
434 Monroe Street
Montgomery, AL 36130
334-242-5760 / 613-5300
Mary Scisney
Genetics Coordinator
1231 Gambell Street, Room 407
Anchorage, Alaska 99501
907-269-3430
Christy LeBlond, M.S.
Genetics Coordinator
Office of Women's and Children's Health
Arizona Department of Health
411 N. 24th Street
Phoenix, AZ 85008
602-220-6550
Jane Congleton
Genetics Program Coordinator
State of Arkansas
4815 W. Markham, Slot 17
Little Rock, AR 72205
501-320-4278
Becky Butler, L.C.S.W.
Genetics Disease Branch
California State Department of Health Services
2151 Berkeley Way, Annex 4
Berkeley, CA 94704-1011
510-540-2552
George C. Cunningham, M.D., M.P.H.
Mountain States Regional Genetics Services
FCHS-MA-A4
4300 Cherry Creek Drive South
Denver, CO 80222-1530
303-692-2423
Joyce Hooker
Genetics Program
Department of Public Health
410 Capitol Avenue
Mailstop #11 MAT
POB 340308
Hartford, CT 06134
860-509-8081
Ada Ubaldi
Genetic Services Program
Office of Maternal and Child Health
800 800 9th Street, S.W., FL 3
Washington, D.C. 20024
202-645-5620
Jill Shuger, Sc.M.
Office of Genetic Services
Division of Public Health
Jesse S. Cooper Memorial Building
P.O. Box 637
Dover, Delaware 19903-0637
302-739-4786
Louis Bartosheski, M.D., M.P.H.
Prevention/Screening/Prenatal Unit
Children's Medical Services
1317 Winewood Boulevard
Tallahassee, FL 32301
904-488-1465
Mittie Moffett, R.N.,M.S.
Genetics Program Manager
Georgia Department of Human Resources
2600 Skyland Drive
Atlanta, GA 30319
404-679-0541
Mary Ann Henson, R.N., M.S.N.
PSRGN Genetics Coordinator-Hawaii
Kapiolani Medical Center
1319 Punahou Street, No. 535
Honolulu, HI 96826
808-973-8795
Jana Hall, Ph.D.
Genetic Services Program Manager
Bureau of Laboratories
Idaho Department of Health and Welfare
2220 Old Penitentiary Road
Boise, ID 83712
208-334-2235
Mary Jane Webb
Genetic Program Coordinator
Division of Family Health
Illinois Department of Public Health
535 West Jefferson Street
Springfield, IL 62761
217-7y82-6557
Sydney Kling, R.N., M.A.
Division of Maternal and Child Health
Section C
Indiana State Department of Health
2 North Meridian Boulevard
Indianapolis, IN 46204
317-233-1268
Taara Vanmeter, M.S.
State Genetics Coordinator
Regional Genetic Consultation Service
2605 JCP, 200 Hawkins Avenue
Iowa City, IA 52242-1083
319-356-2674
Jean Anderson, R.N., C.P.N.P.
Coordinator of Genetic Services
Kansas Department of Health
Landon State Office
900 Southwest Jackson Street
Room 1005 North
Topeka, KS 66612-1290
913-296-1316
Carolyn Domingo, R.N., M.S.
Genetic Program Administrator
Pediatric Services Branch
Department for Public Health
Division of Maternal and Child Health
275 East Main Street
Frankfort, KY 40621
502-564-2154
Sarah J. Wilding, R.N., M.P.A.
Administrator, Genetic Diseases Program
Department of Health and Hospitals
325 Loyola Avenue, Room 308
New Orleans, LA 70112
504-568-5070
Charles Myers, M.S.W.
Division of Maternal and Child Health
Department of Human Services
State House, Station 11
151 Capitol Street
August, ME 04333
207-287-3311
Cheryl Dicara, B.S.W.
Division of Hereditary Disorders
Maryland Department of Health and Mental Hygiene
201 West Preston Street
P.O. Box 13528
Baltimore, MD 21201
410-767-6730
Susan R. Panny, M.D.
Genetics Education Coordinator
Department of Public Health
250 Washington Street
Boston, MA 02108
617-624-5070
Robin Blatt, M.P.H.
State Department of Public Health
3500 North Logan Street
Lansing, MI 48909
517-335-8938
Kristin Peterson
Mississippi State Department of Health
Genetic Screening Program
P.O. Box 1700
Jackson, MS 39215-1700
601-960-7619
Daniel Bender, M.H.S.
Missouri Department of Health
Disabilities Prevention
930 Wildwood Drive
P.O. Box 570
Jefferson City, MO 65102-0570
573-751-6266
N. Aurita Prince Caldwell, M.Ed.
Shodair Children's Hospital
Montana Medical Genetic Program
840 Helena Avenue
Box 5539
Helena, MT 59604
406-444-7530
John Johnson, M.D.
State Genetics Coordinator
Dept. Of Health and Human Services
301 Centennial Mall South
P.O. Box 95044
Lincoln, NE 68509-5044
Julie Miller
Perinatal Coordinator
Nevada Division of Health
505 East King, Room 200
Carson City, NV 89701-4761
702-687-4885
Gloria Deyhle, R.N.
Genetic Services
Bureau of Special Medical Services
6 Hazen Drive
Concord, NH 03301
603-271-4533
Jane Hybsch
Updated 10/00
Special Child, Adult and Early Intervention Services
New Jersey Department of Health and Senior Services
P.O. Box 364
Trenton, NJ 08625-0364
phone: (609) 984-1343
fax: (609) 292-9288
email: klutz@doh.state.nj.us
Kathleen Lutz, MN, CPNP
Program Manager, Child Health Section
New Mexico Department of Health
1190 Saint Francis Drive
Santa Fe, NM 87502
505-827-2353
C. Holly Nyerges, M.S.N.,C.P.N.P.
Director, New York State Genetics Program
Laboratory of Human Genetics
Wadsworth Center for Laboratories and Research
New York State Department of Health
P.O. Box 509
Albany, NY 12201-0509
Co-Director, Division of Human Genetics
The New York Hospital
525 East 68th Street
New York, NY 10021
212-746-1496
Jessica G. Davis, M.D.
Genetic Health Care Branch
Division of Maternal and Child Health
P.O. Box 29597
Raleigh, NC 27626-0597
919-715-3420
Elizabeth Moore, M.S.S.W.
Department of Pediatrics-Medical Genetics
University of North Dakota
School of Medicine
P.O. Box 9037
Grand Forks, ND 58202-9037
701-777-4243
Mary Ebertowski
Genetics Program Coordinator
Early Intervention Unit
Ohio Department of Health
246 North High Street, 5th FL
P.O. Box 118
Columbus, OH 43226-0118
614-644-8389
Debra Wright, R.N.C., B.S.N.
Genetics Section
Oklahoma State Department of Health
1000 N.E. 10th Street
Oklahoma City, OK 73117
405-271-6617
Sarah Cloud
State Genetic Services Coordinator
CDRC-Clinical Services Building
Oregon Health Sciences University
901 E. 18th Avenue
Eugene, OR 97403
541-346-2610
Kerry Silvey, M.A.
Genetics and SIDS Program
Division of Maternal and Child Health
Department of Health, Room 725
P.O. Box 90
Harrisburg, PA 17108
717-783-8143
Jana Burdge
University Pediatric Hospital
University of Puerto Rico Medical School
GPO Box 5067
San Juan, PR 00936
787-756-3091
Jose Garcia-Castro, M.D.
Division of Family Health
Department of Health
3 Capitol Hill
Providence, RI 02908
401-277-2312
Peter Simon, M.D.
Dept. of Health and Environmental Control
Bureau of Maternal and Child Health
Division of Children's Rehabilitative Services
Box 101106
2600 Bull Street
Columbia, SC 29211
803-737-4050
Kathy Semon
Birth Defects and Genetics Center
University of South Dakota
School of Medicine
1011 11th Street
Rapid City, SD 57701
605-394-5110
Carol Christianson
Tennessee Genetics Program
Tennessee Department of Health and Environment
426 Cordell Hull Building, 5th FL
Fifth Avenue, North
Nashville, TN 37247-4701
615-7412-7335
Lee Fleshood, Ph.D.
Genetics Program Coordinator
Bureau of Children's Health
Texas Department of Health
1100 West 49th Street
Austin, TX 78756-3199
512-458-7700
Judith Livingstone
State Genetics Coordinator
Division of Medical Genetics
University of Utah Medical Center
50 North Medical Drive
Salt Lake City, UT 84112
801-581-8943
John Carey, M.D.
Division of Health Improvement
Vermont Department of Health
108 Cherry Street
Burlington, VT 05402
802-863-7606
Carolyn Greene, M.P.H.
Genetics Coordinator-MARGN
Virginia State Department of Health
Division fo Women's and Infant's Health
1500 East Main Street, Room 135
Richmond, VA 23218
804-786-5916
Carolyn Beverly, M.D.
Genetics Program Coordinator
Department of Health
Elainco Complex
Estate Contant 78j-1-2-3
St. Thomas, VI 00802
809-774-1746
Hazel Harrington, R.N.
State Coordinator for Genetic Services
Department of Health
Genetic Services Section
1511 3rd Avenue, Suite 323
Seattle, WA 98101
206-464-6545
Debra Lochner Doyle, M.S.
Genetics Program Coordinator
Bureau of Public Health
1414 East Washington Avenue, Room 167
Madison, WI 53703-3044
608-266-8904
Amy Favour
Director, Genetics Evaluation and Counseling
West Virginia University Medical Center
P.O. Box 9214
Morgantown, WV 26506-9214
304-293-7332
Mary Beth Hummel, M.D.
Wyoming Genetic Program
Department of Health
461 Hathaway Building
Cheyenne, WY 82002
307-777-7166
Larry Goodmay, M.S., M.B.A.