S.C.A.R.E., or Sickle Cell Advocates for Research and Empowerment, is an independent not-for-profit community based organization (run by members of the sickle cell community for the benefit of members of the sickle cell community), dedicated to improving the quality of life of persons with sickle cell disease by developing essential skills of advocacy in said population, toward the ultimate objectives of individual as well as community empowerment.
 
From the Introductory Notes to Evolution Of A Solution by Ivor Balin Pannell

• A Defier's Approach To Confronting Physical Dependency In Sickle Cell Disease: Evolution Of A Solution
  by Ivor Balin Pannell
   
  
• Living with Sickle Cell Disease: From Suffering to Empowerment
  From American Pain Society Bulletin: July/August 1999 - Vol 9, Number 4
  by Deborah G. Oster Pannell